Bangladeshi “Tree Man” and 7 More Rare Syndromes That You Didn’t Even Think Were Real
Every person is unique and beautiful in its own way, but there are also people with various disorders or deformations who can finally let the whole world see how amazing they are and raise awareness of their syndromes through social media.
Nexter.org prepared you a list of people with these rare conditions.
Epidermodysplasia verruciformis
“Tree man” or Abul Bajanda from Bangladesh suffers from a rare syndrome called epidermodysplasia verruciformis which is characterized by heavy warts that grow on his hands and feet.
Two years ago he 25 underwent surgeries, however, the growths have returned.
“It’s a complicated case and we were making progress but he left to go home. I requested him many times to come back but he didn’t,” said Dr. Samanta Lal Sen of Dhaka Medical College and Hospital to CNN.
“He came back to the hospital on Sunday with his mother. He should have come here six months back. He came too late.”
Before the treatment, Abul Bajanda couldn’t take care of himself.
“I want to live like a normal person. I just want to be able to hold my daughter properly and hug her,” he told CNN.
Ehlers-Danlos syndrome
Source: Instagram/sarageurts
This is Sara Geurts and she has a very unique genetic condition called Ehlers Danlos syndrome. She is 27 years old and she uses her social media platform to raise awareness of this syndrome.
Ectodermal dysplasia
Source: Instagram/ilkabruehl
This is a German model and she has a rare genetic disorder called ectodermal dysplasia. She truly became an inspiration to thousands of people through her positivity and love for photography.
Rare beauty marks
Source: Instagram/cassandranaud
Many people hate their birthmarks and try to get rid of them as soon as possible but a beautiful dancer Cassandra find it very unique and amazing.
Waardenburg syndrome
Source: Instagram/stef.sanjati
Stef Sanjati inherited a genetic mutation called Waardenburg Syndrome, which is characterized by different degrees of deafness, changes in pigmentation, and structural defects. If you want to know more about it, watch a video she posted on Youtube.
Extraordinarily long legs
Source: Instagram/iostergren
Ia Ostergren is a model with the longest legs in the world! Even though they are disproportionate to the rest of her body, she loves everything about herself and thrives in her field.
Argyria
Source: Instagram/therealblueman
It looks like Photoshop editing but actually, this is a rare case of Argyria which turns the skin blue.
Albinism
Source: Facebook/Danil Golovkin
This is a model Nastya Kumarova at the age of 16. She looks like a porcelain doll because she has a rare genetic disorder called albinism. People who have it lack pigment in their eyes, hair, and skin.
Which one of these did you find the most surprising?
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